Privacy

Your privacy is of upmost concern to us. We adhere to a general policy to protect the privacy of our users:

We only collect information that specifically identifies an individual, after obtaining that individual's express consent.  Such information includes but is not limited to a user's name, address, date of birth, telephone number, Social Security Number, email or social media contact information, and genomic information. Likewise, encrypted email addresses and passwords are retained only with user permission.  You will be asked for limited contact information when you sign in to our site, so that we may assign you a unique user id with which your data and our reports will be associated.  We will use your user id information and contact information when reporting our analysis of genomic data back to you.

We do not sell, rent, or exchange of any user data that could identify any user, including genomic data, without a user's express consent.  Unless and until you select a less restrictive privacy policy by express action to opt out of our default privacy policy, then our default privacy setting described below applies.

Our default privacy policy is that a user's genomic data and other personal information will never be shared with anyone else, unless we are compelled by law to disclose the information to comply with statutory or regulatory obligations, or court order.  We will disclose to users any attempt by anyone to obtain involuntary access to their information unless that disclosure to user is in violation of law.  Genformatic's interpretation of its legal obligations will control, including its interpretation of applicable law or legal standard and conflicts of law resolution.

We enable users to select a variety of more open privacy settings on their genomic, medical history and trait information, ranging from completely open access, possible access and use by medical research investigators, and access by physicians, among others.

Specifically, our more open privacy options are:

1.

Allow sharing of all genomic data, other medical history and trait information, and also my other personal identifying information, with my personal physicians or health care providers as follows:

2.

Allow sharing of all genomic data, medical history and trait information, and also my other personal identifying information with following named individuals as follows:

3. 

Allow sharing of all genomic data and other medical history or trait information with persons that Genformatic, in its sole discretion, has reasonable belief to be legitimate medical or scientific research investigators, but only in an anonymous fashion, with other personal identifying information such as name, address, date of birth and contact information removed or disassociated from the data prior to release. 

a. Allow follow-up requests for additional information or permission by providing contact information consisting only of user's email address

b. Do not allow follow-up requests for additional information

4.

Allow sharing of all genomic data and other medical history or trait information with any individual or institution except governmental agencies or their employees, but only in an anonymous fashion, with other personal identifying information such as name, address, date of birth and contact information removed or disassociated from the data prior to release.

a.      Allow follow-up requests for additional information or permission by providing contact information consisting only of user's email address

b.      Do not allow followup requests for additional information

 

5.

Allow sharing of genomic data and other medical history or trait information with any individual or institution except insurance industry organizations or employees, but only in an anonymous fashion, with other personal identifying information such as name, address, date of birth and contact information removed or disassociated from the data prior to release.

a.      Allow follow-up requests for additional information or permission by providing contact information consisting only of user's email address

b.      Do not allow follow-up requests for additional information

6.

Allow open access of all genomic data and medical history or trait information with any individual, organization, company or institution without reservation or limitation, except that the data should only be released in an anonymous fashion, with other personal identifying information such as name, address, date of birth and contact information removed or disassociated from the data prior to release.

a.      Allow follow-up requests for additional information or permission by providing contact information consisting only of user's email address

b.  Do not allow follow-up requests for additional information